Saturday night!

Well, hello everyone,

I have been having trouble figuring out how to get to my blog to post. I think it's been a while since I did.

The drug study has not begun yet, so I don't know if I qualify. Oh, the waiting drives me mad!!!!!!!!!!!!!!!

My family is doing well. Aimee & Samantha are having a ball. They joined the "Little Gym" and are having a great time. Eric, however, has been very ill and has not worked for a couple of weeks. The doctors think he is suffering from a virus (high fever and chills and sleeps all the time). I sure hope he's better soon.

I miss Aimee and Sam sooooo much I feel like I could just s c r e a m!!!!!!!!!!!!

Dad is still going to PT for his back and legs. Linda and Michael are hanging in there.

I'm hanging in there, too.

Hope all of you are hanging in there too! Sometimes, it's the best you can do!

Peace and Hope,

LCC

I'm still waiting!

New drug study

Hi,

I was supposed to start a new drug study tomorrow but the appointment was canceled. I'm disappointed. I'd like to get the ball rolling!

Oh well, life is full of disappointments especially when you have EOAD. I try to roll with the punches but sometimes it gets difficult.

I miss my daughter and granddaughter! My life feels empty now without them. My sister received a kindle for her anniversary and now all she does is read!!!!!!!!!!
Don't get me wrong, she takes me places but doesn't have anytime to visit anymore.

I guess I'm just a little sad today.

Thanks for listening.

Peace and Hope,

LCC

Sad, scary feelings

Hi to all,

Lately I have been feeling more detached from things. Yes, I can still cry and scream but not much. I find I enjoy staying home more than going out.

I find it's becoming more difficult going out because of the background noise and commotion. Unfortunately, I can't do 2 things at the same time anymore. Totally, unable to multitask. It's hard to be out with more than one person and if there is a radio or music on I'm sunk. I just can't focus or hear! It's extremely annoying!

I've told some of my friends and family about this but the only ones that get it are my sister and my daughter. No one else understands.

It's so weird. Sometimes I feel like I'm doing better others I feel the decline. It's the roller coaster!!!!

Alzheimer's Disease sucks!

If you know someone who has EOAD/YOAD or just AD, please think about what I've said and try to understand and be helpful.

Thanks for listening. Any Comments?

Peace and Hope,

LCC

It's been a while

Hi to everyone,

Well, where should I start? I did go visit Aimee and Sam et al. It was a great visit. I was re-introduced to my granddaughter, Samantha. It was absolutely wonderful. She's growing so fast that I just can't believe it. She's gorgeous!

We did drive down to Florida. Met Dad, Linda and Michael there. Had a wonderful time. Got pictures of Sam putting her feet in the water (Gulf). She was adorable in her pink tutu bathing suit!!!

As for me, I'm doing OK. I have been suffering with headaches and dizziness again. I'm looking into a new drug study. The sponsor is Genetech, Inc. drug MABT5102A (crenezumab) testing efficacy and safety, Phase IIb. I am looking into the IV portion with no placebo. It is exciting yet scary. Some of the side effects are brain edema, stroke, heart attack (but so far very few and it seems to be related to a higher dose).

I hope all of you are well. If you have EOAD/YOAD you may want to look into the new study drugs coming out. If you are a caregiver you may want to inform your LO about these studies.

You can always go to www.alz.org to find what you need or click on the Message Boards and ask questions.

Drug trials are starting at the end of June. Keep your fingers crossed. A little prayer might not hurt either!

Peace and Hope,

LCC

OMG I'm so excited!

Hi to All,

Spent 2 days at the New Orleans Jazz and Heritage Festival. It was fun. Saw and heard some good music.

I am leaving this Thursday to fly to see Aimee, Sam, Eric and Turtle! I just can't wait!

Aimee says Samantha has grown so much. I can't wait to see her and hold her and smell her!

As for me, I'm declining. I'm even having trouble walking and keeping my balance. I just went to the doctor for my annual. I waiting to hear results of all the tests. Keep your fingers crossed!

After my 10 day visit with Aimee, we will drive to Florida to meet with Linda, Michael and Dad for a week's vacation on the beach. It's going to be great (I hope).

I won't be posting much until I come back because Aimee's computer is on the fritz again.

Peace and Hope,

LCC

Mother's Day 2011

Hi to All,

Happy Mother's Day to all who are Moms.

Today is a bittersweet day for me. As you know my Mom died last November. This is my first Mother's Day without her. It is sad for me and I miss her. I have nothing planned.

On the other side, today is my daughter's First Mother's Day! That is very exciting! I am so glad for her. and, of course, very proud. I called her to wish her a Happy Mother's Day.

So, I have very mixed feelings today. I don't really know how to feel.

I guess I'll just stay home and do some PV work.

Peace and Hope,

LCC