Hi to everyone,
Well, where should I start? I did go visit Aimee and Sam et al. It was a great visit. I was re-introduced to my granddaughter, Samantha. It was absolutely wonderful. She's growing so fast that I just can't believe it. She's gorgeous!
We did drive down to Florida. Met Dad, Linda and Michael there. Had a wonderful time. Got pictures of Sam putting her feet in the water (Gulf). She was adorable in her pink tutu bathing suit!!!
As for me, I'm doing OK. I have been suffering with headaches and dizziness again. I'm looking into a new drug study. The sponsor is Genetech, Inc. drug MABT5102A (crenezumab) testing efficacy and safety, Phase IIb. I am looking into the IV portion with no placebo. It is exciting yet scary. Some of the side effects are brain edema, stroke, heart attack (but so far very few and it seems to be related to a higher dose).
I hope all of you are well. If you have EOAD/YOAD you may want to look into the new study drugs coming out. If you are a caregiver you may want to inform your LO about these studies.
You can always go to www.alz.org to find what you need or click on the Message Boards and ask questions.
Drug trials are starting at the end of June. Keep your fingers crossed. A little prayer might not hurt either!
Peace and Hope,
LCC
Friday, June 17, 2011
Wednesday, May 11, 2011
OMG I'm so excited!
Hi to All,
Spent 2 days at the New Orleans Jazz and Heritage Festival. It was fun. Saw and heard some good music.
I am leaving this Thursday to fly to see Aimee, Sam, Eric and Turtle! I just can't wait!
Aimee says Samantha has grown so much. I can't wait to see her and hold her and smell her!
As for me, I'm declining. I'm even having trouble walking and keeping my balance. I just went to the doctor for my annual. I waiting to hear results of all the tests. Keep your fingers crossed!
After my 10 day visit with Aimee, we will drive to Florida to meet with Linda, Michael and Dad for a week's vacation on the beach. It's going to be great (I hope).
I won't be posting much until I come back because Aimee's computer is on the fritz again.
Peace and Hope,
LCC
Spent 2 days at the New Orleans Jazz and Heritage Festival. It was fun. Saw and heard some good music.
I am leaving this Thursday to fly to see Aimee, Sam, Eric and Turtle! I just can't wait!
Aimee says Samantha has grown so much. I can't wait to see her and hold her and smell her!
As for me, I'm declining. I'm even having trouble walking and keeping my balance. I just went to the doctor for my annual. I waiting to hear results of all the tests. Keep your fingers crossed!
After my 10 day visit with Aimee, we will drive to Florida to meet with Linda, Michael and Dad for a week's vacation on the beach. It's going to be great (I hope).
I won't be posting much until I come back because Aimee's computer is on the fritz again.
Peace and Hope,
LCC
Sunday, May 8, 2011
Mother's Day 2011
Hi to All,
Happy Mother's Day to all who are Moms.
Today is a bittersweet day for me. As you know my Mom died last November. This is my first Mother's Day without her. It is sad for me and I miss her. I have nothing planned.
On the other side, today is my daughter's First Mother's Day! That is very exciting! I am so glad for her. and, of course, very proud. I called her to wish her a Happy Mother's Day.
So, I have very mixed feelings today. I don't really know how to feel.
I guess I'll just stay home and do some PV work.
Peace and Hope,
LCC
Happy Mother's Day to all who are Moms.
Today is a bittersweet day for me. As you know my Mom died last November. This is my first Mother's Day without her. It is sad for me and I miss her. I have nothing planned.
On the other side, today is my daughter's First Mother's Day! That is very exciting! I am so glad for her. and, of course, very proud. I called her to wish her a Happy Mother's Day.
So, I have very mixed feelings today. I don't really know how to feel.
I guess I'll just stay home and do some PV work.
Peace and Hope,
LCC
Thursday, April 14, 2011
It's me, again.
Hi,
I sure hope all you gals and guys didn't give up on me!
I'm very sorry for taking sooooooooooooooo long to post again. I am an Alzheimer's idiot who couldn't remember how to get back to her own blog. Please, forgive me.
Things are going ok here. Orange cat is laying on my lap and computer as I type. White dog is sleeping on the cool floor. All is well.
Linda returned home from Aimee's last Saturday. She stayed 2 weeks with them. She had a great time and fell in love with Samantha too!
I've been very tired lately. My doctor says it's part of my disease so deal with it!
I do most times but sometimes I could just scream and rage about it, Then I just have to let it go.
Going to bed now,
Sweet Dreaams!
LCC
I sure hope all you gals and guys didn't give up on me!
I'm very sorry for taking sooooooooooooooo long to post again. I am an Alzheimer's idiot who couldn't remember how to get back to her own blog. Please, forgive me.
Things are going ok here. Orange cat is laying on my lap and computer as I type. White dog is sleeping on the cool floor. All is well.
Linda returned home from Aimee's last Saturday. She stayed 2 weeks with them. She had a great time and fell in love with Samantha too!
I've been very tired lately. My doctor says it's part of my disease so deal with it!
I do most times but sometimes I could just scream and rage about it, Then I just have to let it go.
Going to bed now,
Sweet Dreaams!
LCC
Tuesday, April 12, 2011
It's me!!
Hi to All,
Sorry it's been so long since I've blogged. I forgot how to get on and forgot passwords and such. Thanks to my wonderful computer literate sister, Linda, she has figured all this out so here I am.
Where to start, well, After Mom died things got a little rough for all of us. I spent Christmas with Aimee and Eric (Dad had Linda and Michael) so it all worked out. Not a very happy Christmas but it came and went.
I went to Georgia to spend some time with Aimee at the end of her pregnancy. Poor thing, some things didn't go so well, but I proud to say that I am a very happy grandmother to a beautiful granddaughter. Samantha Joan was born in January!!!!!
Wow, I don't remember being this happy in a very long time!
I'm back home now but I spent 10 weeks with Aimee and Sam (and Eric of course). Sam and I really connected. It's so very hard being away from her. I just can't describe the feeling of being a grandmother. It's quite wonderful!
Me, well, I'm doing OK. I'm extremely tired from my stay in Georgia but I loved every minute. I'm back to needing naps but that's OK with me.
I realize how lucky I am that God helped me stay alert and together enough to be helpful to Aimee and Sam. When Aimee couldn't do much (she had a C-section with some problems), I was able to step right in and take care of the three of them. Turtle too.
I am glad to be home to see about my Father. He developed some severe back problems while I was gone. My sister had set him up to see a pain specialist. Michael and I took him there for his injections. Unfortunately, they have helped him very little. He is set up to get more in less than a month now.
As for my Alzheimer's, well, it's still here. Am I getting worse? Yes. Is there anything I can do about it? No.
Aimee asked me not to participate in another drug study. She's afraid I'll get worse faster. So, for right now, I won't.
I've pretty much stopped driving. Gave my car to Eric. It's so weird not having a car. I've had a car since I was 15 years old. Sometimes it gets me down but then I think about how lucky I am to see and know my granddaughter and my daughter growing into a woman and a wonderful mother, I know how blessed I really am.
So, I still miss my Mom everyday but life goes on. I still do Peer Volunteer work on the AD Message Boards. I am not able to attend the forums in Washington this year but hopefully I'll be around next year and try to attend.
Unfortunately, the AD Assn down here went bust. They don't really have any programs to assist people like me or their caregivers. It's mostly fund raising now. That makes me quite sad. I really enjoyed our bi-monthly EOAD/YOAD groups. I really miss them.
Peace and Hope to you all,
LCC
Sorry it's been so long since I've blogged. I forgot how to get on and forgot passwords and such. Thanks to my wonderful computer literate sister, Linda, she has figured all this out so here I am.
Where to start, well, After Mom died things got a little rough for all of us. I spent Christmas with Aimee and Eric (Dad had Linda and Michael) so it all worked out. Not a very happy Christmas but it came and went.
I went to Georgia to spend some time with Aimee at the end of her pregnancy. Poor thing, some things didn't go so well, but I proud to say that I am a very happy grandmother to a beautiful granddaughter. Samantha Joan was born in January!!!!!
Wow, I don't remember being this happy in a very long time!
I'm back home now but I spent 10 weeks with Aimee and Sam (and Eric of course). Sam and I really connected. It's so very hard being away from her. I just can't describe the feeling of being a grandmother. It's quite wonderful!
Me, well, I'm doing OK. I'm extremely tired from my stay in Georgia but I loved every minute. I'm back to needing naps but that's OK with me.
I realize how lucky I am that God helped me stay alert and together enough to be helpful to Aimee and Sam. When Aimee couldn't do much (she had a C-section with some problems), I was able to step right in and take care of the three of them. Turtle too.
I am glad to be home to see about my Father. He developed some severe back problems while I was gone. My sister had set him up to see a pain specialist. Michael and I took him there for his injections. Unfortunately, they have helped him very little. He is set up to get more in less than a month now.
As for my Alzheimer's, well, it's still here. Am I getting worse? Yes. Is there anything I can do about it? No.
Aimee asked me not to participate in another drug study. She's afraid I'll get worse faster. So, for right now, I won't.
I've pretty much stopped driving. Gave my car to Eric. It's so weird not having a car. I've had a car since I was 15 years old. Sometimes it gets me down but then I think about how lucky I am to see and know my granddaughter and my daughter growing into a woman and a wonderful mother, I know how blessed I really am.
So, I still miss my Mom everyday but life goes on. I still do Peer Volunteer work on the AD Message Boards. I am not able to attend the forums in Washington this year but hopefully I'll be around next year and try to attend.
Unfortunately, the AD Assn down here went bust. They don't really have any programs to assist people like me or their caregivers. It's mostly fund raising now. That makes me quite sad. I really enjoyed our bi-monthly EOAD/YOAD groups. I really miss them.
Peace and Hope to you all,
LCC
Tuesday, November 30, 2010
Mixed Emotions
Hi,
I'm sorry I haven't written in a while but things have been very hectic. Aimee, Eric and Turtle came in the Friday before Thanksgiving. Her baby shower was that Sunday. It was lovely!
The family got to visit and it was great. Mom was unable to attend the baby shower so the next day we unloaded the van so Aimee could show Mom all her stuff. They had a great time together.
On Tuesday, Aimee, Eric, Linda and I went to see the new Harry Potter movie Deathly Hallows which was really good.
Unfortunately on Thanksgiving Morning, Mom had a stoke. We called the Home Health nurse and she came out and verified it. Poor Mom, her right side was very weak and her speech was slurred and she could barely swallow. I called in Hospice.
The hospice doctor and nurse were
wonderful and helpful. Luckily, I had the hospice meds I needed to keep Mom comfortable. My Mom died peacefully late Saturday night (although the official day is Sunday) with all of us at her bedside. She was in her own home with her cat Jonsey sleeping with her.
I am very sad. I miss my Mom but I'm not sorry she's gone because I knew she didn't want to live that way. She had a Living Will that stated her wishes. We all knew her wishes and she didn't want any part of that kind of life.
Seems like things are a big blur! I think I must be in some kind of shock because I haven't shed a tear yet. We've been so busy making funeral arrangements, phone calls to family and friends. It's been difficult.
My poor Dad is having such a hard time. He and Mom had been married 61 years! He's feeling pretty lost.
Well, I'm VERY tired and I must sleep now.
Please pray for Mom, me and my family.
Thanks.
Peace and Hope,
LCC
I'm sorry I haven't written in a while but things have been very hectic. Aimee, Eric and Turtle came in the Friday before Thanksgiving. Her baby shower was that Sunday. It was lovely!
The family got to visit and it was great. Mom was unable to attend the baby shower so the next day we unloaded the van so Aimee could show Mom all her stuff. They had a great time together.
On Tuesday, Aimee, Eric, Linda and I went to see the new Harry Potter movie Deathly Hallows which was really good.
Unfortunately on Thanksgiving Morning, Mom had a stoke. We called the Home Health nurse and she came out and verified it. Poor Mom, her right side was very weak and her speech was slurred and she could barely swallow. I called in Hospice.
The hospice doctor and nurse were
wonderful and helpful. Luckily, I had the hospice meds I needed to keep Mom comfortable. My Mom died peacefully late Saturday night (although the official day is Sunday) with all of us at her bedside. She was in her own home with her cat Jonsey sleeping with her.
I am very sad. I miss my Mom but I'm not sorry she's gone because I knew she didn't want to live that way. She had a Living Will that stated her wishes. We all knew her wishes and she didn't want any part of that kind of life.
Seems like things are a big blur! I think I must be in some kind of shock because I haven't shed a tear yet. We've been so busy making funeral arrangements, phone calls to family and friends. It's been difficult.
My poor Dad is having such a hard time. He and Mom had been married 61 years! He's feeling pretty lost.
Well, I'm VERY tired and I must sleep now.
Please pray for Mom, me and my family.
Thanks.
Peace and Hope,
LCC
Monday, November 1, 2010
November 1st
Hi,
I'm back from Aimee & Eric's. Had a wonderful time. Tired but doing ok.
I am helping Aimee's friend Courtney with Aimee's Baby coming this month. My sister is helping me too. It's fun to plan a shower.
I'm sitting here on Mom's sofa. White dog and orange cat are with me. Mom's sleeping in her recliner. Dad's at the grocery and Linda is out shopping. This is life.
Wow, how has it come to this?? I was an RN with a good job and lots of things happening in my life. Now, it's take one day at a time. I never know what is going to happen next. I have an appointment to go back to the research doctor later this week or next.
The one good thing that is happening is that I'm going to be a grandmother sometime in late January!! Hip hip hooray!
I'm very proud of Aimee. She is doing well. She's going to be a great Mom!
Peace and Hope,
LCC
I'm back from Aimee & Eric's. Had a wonderful time. Tired but doing ok.
I am helping Aimee's friend Courtney with Aimee's Baby coming this month. My sister is helping me too. It's fun to plan a shower.
I'm sitting here on Mom's sofa. White dog and orange cat are with me. Mom's sleeping in her recliner. Dad's at the grocery and Linda is out shopping. This is life.
Wow, how has it come to this?? I was an RN with a good job and lots of things happening in my life. Now, it's take one day at a time. I never know what is going to happen next. I have an appointment to go back to the research doctor later this week or next.
The one good thing that is happening is that I'm going to be a grandmother sometime in late January!! Hip hip hooray!
I'm very proud of Aimee. She is doing well. She's going to be a great Mom!
Peace and Hope,
LCC
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