Wednesday, December 14, 2011

Sorry, I lost my way again

Hi to All,

Happy Holidays!

I've been a little down and out. I've been missing my Mom.

The drug company is Genetech. The drug is MABT5102A. Iv monoclonal antibodies.

So far, I'm doing OK. I did miss some doses of Namenda do to the stupid out of town pharmacy. I guess I missed about 2 1/2 weeks. Wow, it sure made a difference. I was visiting Aimee at that time. She said she was really worried about me and that I was declining. She wanted me to call my doctor. Of course, I didn't.

Luckily, once I got back on my Namenda (after about a week) I started feeling better.

Don't let anyone fool you about medications. They really work for most of US (EOAD).

My Dad is down too because he misses my Mom. They were married over 60 years.

Everyone is doing OK.

I am leaving again to visit Aimee & Sam. And Eric & Turtle. I will be spending Christmas with them. I'm soooooooooo excited. Sam's first Christmas!!

Dad, Linda & Michael will be together and hold down the fort.

I wish all of you Peace, Health and Happiness!


Wednesday, November 16, 2011

It's me again

Hi to all,

I think I figured out how to bookmark my blog so I can get to it easier now. I'm keeping my fingers crossed.

The drug study I'm in is they give me iv antibodies to attack the abnormal proteins in my brain that stick together and turn into plaques. They are even hoping that these antibodies will attack the proteins before they are able to cross the blood brain barrier. If so, they would never enter my brain. Isn't that great!

There are some side effects like brain edema, strokes and heart issues but so far I haven't had any of that (thank goodness). I have had headaches and some dizziness. That is a small price to pay if this works!!!

I hope everyone is healthy and doing fine.

I have another infusion then I fly to see my daughter and granddaughter!! I can't wait!! Sam is changing so much each day! Smarter, taller, bigger, stronger. I can't stand that I am missing so much!

My days go by slowly sometimes. I miss my Mom. It's almost a year now. Wow, sometimes it seems like yesterday.

Put some bug juice on white dog as he seems to be itchy again.

Thanks for all the love and support.

Peace and Hope,


Sunday, November 13, 2011

I'm still here!

Hi to all,

Yes, I am still here and doing well. I am unable to view my last post so I don't know where to begin.

First, I forgot how to get back here to post. I've tried for several months without success. I'm not actually sure what I did to get here tonight.

As for me I am participating in a new drug study. I can't remember the same of the drug or class of drug. It is administered to me IV. The drug company requires I follow their protocol. I often have blood drawn, have EKG's and Urinalyses and MRI's done. (I am still testing the safety of this drug).

On the brighter side, I have a granddaughter. She will be a year old in January. She is beautiful, brilliant and even sometimes a little bratish. lol. She's wonderful!!!!!

Her name is Samantha. She has blue eyes, blondish, curly hair, fair complected and the sweetist smile you have ever seen.

I just love her to death! She and her Mom make me so happy. They spent a month with me about a month ago. It was heaven but I was completely exhausted!

This site is sending me a red message stating they could not contact. so i may loose this message.

I feel I am holding my own in this war with EOAD. Yes, I have declined, but just a little.

I hope and pray all of you are well and happy.

Oh, I had to put Mom's cat(Jonsey) to sleep last week. She became very ill and could not hold anything down. My vet thought it was time. She was very old. It was very, very sad! Dad & I cried a lot!

I still have white dog but orange cat stays with my sister now. She has 4 other cats. Her husband is very sweet!

My Dad was ill for a while but is finally getting better. He had a terrible UTI and then he had problems walking. He's almost back to normal. Yea!!

He will be 90 in February!

The holidays are upon us. I will be here for Thanksgiving with Dad, Linda and Michael. I will leave for Aimee's the Monday after Thanksgiving.

Peace be with all of you,

Please, write me if you have any comments. I'd love to hear from all of you.

I will post again soon (I hope).


Saturday, July 23, 2011

Saturday night!

Well, hello everyone,

I have been having trouble figuring out how to get to my blog to post. I think it's been a while since I did.

The drug study has not begun yet, so I don't know if I qualify. Oh, the waiting drives me mad!!!!!!!!!!!!!!!

My family is doing well. Aimee & Samantha are having a ball. They joined the "Little Gym" and are having a great time. Eric, however, has been very ill and has not worked for a couple of weeks. The doctors think he is suffering from a virus (high fever and chills and sleeps all the time). I sure hope he's better soon.

I miss Aimee and Sam sooooo much I feel like I could just s c r e a m!!!!!!!!!!!!

Dad is still going to PT for his back and legs. Linda and Michael are hanging in there.

I'm hanging in there, too.

Hope all of you are hanging in there too! Sometimes, it's the best you can do!

Peace and Hope,


Sunday, July 10, 2011

Monday, June 27, 2011

New drug study


I was supposed to start a new drug study tomorrow but the appointment was canceled. I'm disappointed. I'd like to get the ball rolling!

Oh well, life is full of disappointments especially when you have EOAD. I try to roll with the punches but sometimes it gets difficult.

I miss my daughter and granddaughter! My life feels empty now without them. My sister received a kindle for her anniversary and now all she does is read!!!!!!!!!!
Don't get me wrong, she takes me places but doesn't have anytime to visit anymore.

I guess I'm just a little sad today.

Thanks for listening.

Peace and Hope,


Thursday, June 23, 2011

Sad, scary feelings

Hi to all,

Lately I have been feeling more detached from things. Yes, I can still cry and scream but not much. I find I enjoy staying home more than going out.

I find it's becoming more difficult going out because of the background noise and commotion. Unfortunately, I can't do 2 things at the same time anymore. Totally, unable to multitask. It's hard to be out with more than one person and if there is a radio or music on I'm sunk. I just can't focus or hear! It's extremely annoying!

I've told some of my friends and family about this but the only ones that get it are my sister and my daughter. No one else understands.

It's so weird. Sometimes I feel like I'm doing better others I feel the decline. It's the roller coaster!!!!

Alzheimer's Disease sucks!

If you know someone who has EOAD/YOAD or just AD, please think about what I've said and try to understand and be helpful.

Thanks for listening. Any Comments?

Peace and Hope,