Friday, June 25, 2010

A new day

Hi to all,

Sorry I haven't posted in a while. Sometimes, I think that I can't really think anymore. Then other days are better.

I went to my clinical drug trial the other day with my sister and they seem to think I am holding my own. I think that is true but sometimes I really think I'm living in the twilight zone.

Sorry, I've got to stop. Mom's hospice nurse is here.

Peace and Hope,


Sunday, June 13, 2010

Sunday sweet Sunday!

Hi to All,

Dad, Linda, Michael and I went to a play today called Avenue Q. Wonderful Gloria came to stay with Mom.

I have to wear earplugs at the play because it it too loud for me. This play was strange and except for a few bright moments I didn't understand the purpose of this play. The voices were great for singing but besides that...I didn't get it.

We came home after the play. Later Michael went to pick-up some take out food. We ate dinner. After that I went to their house to watch "True Blood" and "Treme" because I don't get HBO. I'll tell you I was pretty lost watching both of them. I'm not sure what the problem is. Perhaps my input is damaged?? Or too slow to keep up?? Or my concentration is gone? I don't know but I sure had a difficult day!!

It makes me wonder what else is going on inside this brain of mine?? What else am I missing? I know I forget a lot of stuff but I'm not prepared to give up going to the theatre or watching some TV!! Sometimes I feel like I'm outside my body looking in or just simply loosing my mind!!!!

Thanks for listening.

Peace and Hope,

Thursday, June 10, 2010

Getting to the Nitty Gritty

Hi to All,

Lately I have been noticing things about myself that tell me that I am declining. I am forgetting more and more things. My visual/spatial thing is getting worse. And I am definitely getting more confused especially when I go out. Noises bother me a lot!

I guess I am lucky to be aware enough to know I'm declining but it's also very frightening. I had an appointment this week with my neurologist and she agreed I was declining and suggested I decrease the antidepressant I take at bedtime. I am hesitant to do so because when I don't sleep enough I starting declining rapidly. I am thinking about what to do.

Thank goodness for my wonderful Sister who helps me get around and stay on top of things. I don't know what I would do without her.

I know, sometimes, I'm a pain in the butt, because I ask the same question many times and often forget the answer.

I am really getting scared about this decline. It makes me feel insecure about my future. I've always prided myself on being able to take care of myself.

I wish I could take you all inside my brain and body so I could explain what is going on and how I feel. It all foreign!! Some Long term memories are even gone!

I sometimes feel like an alien has entered my brain and body and has altered all my senses. Sometimes I feel my hands and they don't feel like mine or even look like mine. I feel somehow this alien is detaching me from my mind and body and sucking all the life out of me.

Alzheimer's is such a strange disease.

Peace and Hope,


Wednesday, June 2, 2010

June 2nd The opening day of Hurricane season

Hi to all,

Just wanted to officially welcome all of you to our New Hurricane Season. We hope and pray that the oil in the Gulf of Mexico will stop spewing and that Hurricane season will be light without a lot a major storms. Things are NOT going well here. We need all the help we can get!!

I've been very tired again recently. I hope this too will pass.

Take Care.

Peace and Hope,