Friday, June 17, 2011

It's been a while

Hi to everyone,

Well, where should I start? I did go visit Aimee and Sam et al. It was a great visit. I was re-introduced to my granddaughter, Samantha. It was absolutely wonderful. She's growing so fast that I just can't believe it. She's gorgeous!

We did drive down to Florida. Met Dad, Linda and Michael there. Had a wonderful time. Got pictures of Sam putting her feet in the water (Gulf). She was adorable in her pink tutu bathing suit!!!

As for me, I'm doing OK. I have been suffering with headaches and dizziness again. I'm looking into a new drug study. The sponsor is Genetech, Inc. drug MABT5102A (crenezumab) testing efficacy and safety, Phase IIb. I am looking into the IV portion with no placebo. It is exciting yet scary. Some of the side effects are brain edema, stroke, heart attack (but so far very few and it seems to be related to a higher dose).

I hope all of you are well. If you have EOAD/YOAD you may want to look into the new study drugs coming out. If you are a caregiver you may want to inform your LO about these studies.

You can always go to www.alz.org to find what you need or click on the Message Boards and ask questions.

Drug trials are starting at the end of June. Keep your fingers crossed. A little prayer might not hurt either!

Peace and Hope,

LCC

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