Hi to All,
My name is Lisa. I am 55 years old and was diagnosed with Early/Young Onset Alzheimer's Disease about 1 1/2 years ago.
Please, come join me on this roller coaster ride called Alzheimer's Disease.
I live alone. Well, not really alone. I have a white dog named Winston and an Orange tabby cat named Simon. Sometimes, I can't remember their names so I call them by their colors.
The last year or so has been quite a journey! Lost just about everything that was important to me. Lost my career as a registered nurse (can't earn a living), lost my boyfriend of eight years (well, actually I asked him to leave, then had to kick him out), lost a lot of dignity (please read Principles for a Dignified Diagnosis at alz.org), lost one of my pets (little dog - he went with his Dad), lost my temper a lot, and slowly but surely I'm loosing my memories and my mind!
Next, I'll be loosing my home of 31 years (moving to a smaller place) . Loosing my Mom who also has AD, oh, I am also her caregiver!
I hope that by sharing this ride with you it may help you and others understand this scary demon. Yes, DEMON. It feels like there is a demon inside of me.
As some of you already know EOAD is very much like a roller coaster ride. Ups and downs, twists and turns, scary and thrilling! Did I say thrilling? No, not thrilling but scary very scary!
Memorial Day today. Lots of family and friends. I used to really enjoy all this now it just makes me crazy! Too much noise, too much commotion, too many conversations.
I have to stop now. Too many people here, talking..talking. I can't follow it all!
I'll write later when it's quiet. I NEED quiet. I must have it to survive.
LCC
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Lisa, I am encouraged by your willingness to share your journey. Feel free to reach out to me anytime. Please keep in touch, write very often.
ReplyDeleteI have other friends who are EOAD too, if you want to connect let me know at: Terrilee@LovingGrand.com.
Blogger on caring for my grandmother with Alzheimer's - LovingGrand BlogspotFollow me and my friends on
Twitter, you'll find a lot of support there.
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Hugs and take care.
♥♥♥